Now, it's something she can't ignore, because the burning almost never goes away.
“Literally, your foot, is on top of a flame... that you can't put out,” Corey said. “I had a full-time career. I was a paralegal, spent all my time outside, worked out at the gym five days a week.”
Now, she is a virtual prisoner to a cold room. But "giving up" is not on her agenda and she offers this advice for others with the disorder.
“Keep looking for that answer, keep searching for that doctor,” she said.
Until then, Corey has a freezer full of ice packs, an air-conditioned room and something that does not run hot and cold - the support of her family.