A little boy with a very rare condition got the surprise of this life when he got a brand new in-home therapy gym – thanks to Sunshine on A Ranney Day.
Hudson loves horses – and that’s the main attraction in his new room in Ball Ground. The walls are painted with farms and trees. The murals are specially made, with sensory items for him to touch and feel.
And hanging from the ceiling in the middle of the room is a saddle in which he can swing from. Organizers said Hudson ran straight to the swing as soon as he saw it.
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The 6-year-old was born with a rare diagnosis of Tuberous Sclerosis Complex (TSC). This uncommon genetic disease causes tumors to grow in many different organs including the eyes, brain, kidney, heart, skin and lungs.
The condition can often be associated with developmental delays, autism and epilepsy.
The diagnosis was first suspected during gestation and was confirmed at birth. Although devastated, Hudson’s parents were able to connect with experienced specialists and the Tuberous Sclerosis Alliance, who helped support them and educate them in knowing what to expect and how to care for Hudson.
Shortly after birth Hudson began having continuous complex partial seizures, up to 200 of them in a 40-hour period. These were due to a golf ball-sized tumor in his left frontal lobe. Due to the significance of the seizures, he underwent brain surgery at only 3 weeks old. This helped to reduce the seizures until the onset of nfantile spasms which are common to TSC patients and emerge around 4-6 months of age. These violent spasms cause extreme body contractions and can impede the development of the brain. Specialists help Hudson manage them medically and his service dog, Denali, helps alert the family to the initiation of seizures to help minimize their effects.
This service dog is trained to sense the onset of a seizure, catching Hudson before they start and helping to break the fall. enali goes everywhere Hudson goes and has proven to be an invaluable member of the family.
Hudson has undergone several surgeries and is proven to be a fighter so his new in-home gym will help him grow and develop in leaps and bounds.
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