Baby born with adult-sized tongue has normal smile after second surgery


A South Dakota baby born with a larger-than-normal tongue is able to smile after successfully completing surgery.

>> Read more trending stories  

Now 16-month-old Paisley Morrison-Johnson was born with Beckwith-Wiedemann syndrome, a condition in which affected infants grow abnormally large parts of the body. In Paisley's case, her tongue was the size of an adult's when she was born. She also had enlarged organs, CBS News reported.

"It was really emotional. It's still emotional. I never got to touch her. I got to see her, but I was being stitched up and they just wheeled an omni bed over to me and there I saw her, you know, just tubes and cords," Paisley's mother, Madison Kienow, told CBS.

Posted by Madison Kienow on Wednesday, July 29, 2015

That day, Paisley was flown 200 miles away to Sanford Children's Hospital in Sioux Falls, South Dakota. She was admitted to the neonatal intensive care unit, where she was monitored by specialists, who identified her condition. Her mother joined her the next day.

"I was blaming it on me. What did I do during my pregnancy that was wrong?" Kienow recalled asking herself. "But it was nothing that I could have prevented. It was just what she was born with. Jesus wanted me to have something a little extra special."

Three months later, Paisley underwent her first tongue-reduction surgery. It grew back. The infant underwent her second surgery about three months ago. She had more than six inches of muscle removed.

Today, Paisley is learning to live with her "baby tongue," and her mother said she is "one of the most facial-expressed babies ever."

"She is one determined little girl. She has a lot of fight in her," Kienow told CBS.

The tongue, a muscular organ, could grow back, but Paisley's future is bright. 

Experts say most children with Beckwith-Wiedmann syndrome see the symptoms slow down as they age. Most people with Beckwith-Wiedemann syndrome don't have serious medical problems associated with the condition, and their life expectancy is usually normal, according to the U.S. National Library of Medicine.

Posted by Madison Kienow on Saturday, September 24, 2016


Reader Comments ...


Next Up in Nation World

Butler Tech moves ahead with rapid expansion plan
Butler Tech moves ahead with rapid expansion plan

The big changes at one of Ohio’s largest career school systems keep coming. Though it’s less than two years old, Butler Tech’s leading edge Bioscience Center in West Chester Township is already expanding its classroom space for the upcoming 2017-2018 school year. And school officials are moving on additional plans to add to the two-story...
Rain can’t dampen excitement at first day of Clark County Fair
Rain can’t dampen excitement at first day of Clark County Fair

Heavy storms passed through the first day of the Clark County Fair on Friday morning, but fairgoers seemed not to notice. For Susan Delong of Xenia, there was fair food to be eaten and shows to watch. “We were a little concerned about the weather,” said Delong, who attends the Clark County Fair every year. “But my granddaughter was...
Students test skills in Springfield by building spaghetti bridges
Students test skills in Springfield by building spaghetti bridges

Using a pound of dry spaghetti noodles, students from the Miami Valley were able to build bridges that held 5 pounds, 10 pounds and even 30 pounds of weight Friday morning at the Clark State Performing Art Center. The students were taking part in the Johns Hopkins University Engineering Innovation program at Clark State Community College. The four-week...
Air France to launch new airline specifically for millennials
Air France to launch new airline specifically for millennials

Air France will launch a new airline specifically for passengers aged 18 to 35. On Thursday, the airline announced its new airline, Joon, which will begin operating routes this fall.  >> Read more trending news According to a news release, Joon’s targeted clientele is young working professionals whose lifestyles revolve around...
Korn’s Brian Welch apologizes for comments on Linkin Park singer Chester Bennington’s suicide
Korn’s Brian Welch apologizes for comments on Linkin Park singer Chester Bennington’s suicide

Just hours after Linkin Park singer Chester Bennington was found dead from suicide, Brian “Head” Welch, who is a guitarist for the band Korn, made a few controversial statements on his Facebook page about the singer’s death. Welch made a series of posts, all of which have since been deleted from his page, criticizing the singer...
More Stories