Baby born with adult-sized tongue has normal smile after second surgery


A South Dakota baby born with a larger-than-normal tongue is able to smile after successfully completing surgery.

>> Read more trending stories  

Now 16-month-old Paisley Morrison-Johnson was born with Beckwith-Wiedemann syndrome, a condition in which affected infants grow abnormally large parts of the body. In Paisley's case, her tongue was the size of an adult's when she was born. She also had enlarged organs, CBS News reported.

"It was really emotional. It's still emotional. I never got to touch her. I got to see her, but I was being stitched up and they just wheeled an omni bed over to me and there I saw her, you know, just tubes and cords," Paisley's mother, Madison Kienow, told CBS.

Posted by Madison Kienow on Wednesday, July 29, 2015

That day, Paisley was flown 200 miles away to Sanford Children's Hospital in Sioux Falls, South Dakota. She was admitted to the neonatal intensive care unit, where she was monitored by specialists, who identified her condition. Her mother joined her the next day.

"I was blaming it on me. What did I do during my pregnancy that was wrong?" Kienow recalled asking herself. "But it was nothing that I could have prevented. It was just what she was born with. Jesus wanted me to have something a little extra special."

Three months later, Paisley underwent her first tongue-reduction surgery. It grew back. The infant underwent her second surgery about three months ago. She had more than six inches of muscle removed.

Today, Paisley is learning to live with her "baby tongue," and her mother said she is "one of the most facial-expressed babies ever."

"She is one determined little girl. She has a lot of fight in her," Kienow told CBS.

The tongue, a muscular organ, could grow back, but Paisley's future is bright. 

Experts say most children with Beckwith-Wiedmann syndrome see the symptoms slow down as they age. Most people with Beckwith-Wiedemann syndrome don't have serious medical problems associated with the condition, and their life expectancy is usually normal, according to the U.S. National Library of Medicine.

Posted by Madison Kienow on Saturday, September 24, 2016


Reader Comments ...


Next Up in Nation World

The president's Thanksgiving message to the troops causes a stir
The president's Thanksgiving message to the troops causes a stir

On Thanksgiving morning, President Donald Trump delivered a message via teleconference from his luxury resort in Mar-a-Lago to American military service members overseas — but not everyone is happy about it. Retired Lieutenant General Mark Hertling appeared on CNN on Thursday to air his grievances with the content of President Trump’s Thanksgiving...
Fellow teen idol Mickey Dolenz of The Monkees remembers David Cassidy
Fellow teen idol Mickey Dolenz of The Monkees remembers David Cassidy

Few people knew the late David Cassidy like Monkees band member and former teen idol Mickey Dolenz. Dolenz told Billboard that he met Cassidy early on in their careers and kept in touch with him through the years. They even toured together with Peter Noone in 2013 in “The World’s Greatest Teen Idols” tour. He told the publication...
U.S. Navy aircraft with 11 on board crashes into Pacific: Live updates
U.S. Navy aircraft with 11 on board crashes into Pacific: Live updates

A U.S. Navy aircraft with 11 people on board has crashed into the Pacific Ocean, officials said Wednesday. >> Click here or scroll down for the latest updates  >> Read more trending news 
Caught on camera: Teacher arrested, accused of doing cocaine in the classroom
Caught on camera: Teacher arrested, accused of doing cocaine in the classroom

A high school English teacher has been arrested after she was secretly filmed by her students while appearing to cut up and snort what police suspect to be cocaine in an empty classroom, WGN9 reports. Samantha Cox, 24, was taken away from Lake Central High School in St. John, Indiana, in handcuffs after students showed the video to their principal...
Jimmy Fallon shares hilarious and gross Thanksgiving fails
Jimmy Fallon shares hilarious and gross Thanksgiving fails

Leave it to Jimmy Fallon to help his fans get over their Thanksgiving dinner fails. On Wednesday night, the comedian and “The Tonight Show Starring Jimmy Fallon” host shared some of his fan-submitted Thanksgiving fails that will make you thankful that your dinner came out much better! Not even old grandpa got a pass when it came to some...
More Stories